Sunday, November 11, 2012

Bless Her Heart...literally

 My sweet friend Jonelle wrote that in an email and I had to use it as the title (thanks Nellie) :)

Not sure why it is SO hard for me to keep up with this thing.  I've actually had this post sitting here half done for a while and never finished it.  I love having this blog, I just can't ever find the time to do it!  But enough of that.  Since this happened all the way back in May/June, it's a little outdated, but it was the biggest thing that happened to us this year, so I wanted to make sure it got documented.  That is also why this post is a mile long...oy.

Jayne is doing fantastically well and we are so thankful!  Thank you to all who visited, sent well-wishes, prayers and even gifts our way.  We truly appreciate it more than you know.  It really is an amazing thing to have so many prayers in your behalf.  It's almost tangible and there was such a peace in our home the whole week leading up to her surgery.
The night before...terrorizing Grandpa Frazier.  Thanks again for staying with Max and Lucy!

We seriously feel so blessed to live so close to Primary Children's Hospital.  They are amazing and we knew she was getting the best of the best.  It is truly humbling to be there and see all the brave little kids who have to face so much in their lives.
In the waiting room.
Getting ready
Off she goes.  One of her surgeons was nice enough to lend his iphone for the ride.  We were surprisingly calm as they rolled her away.  The surgery took about 3 and 1/2 hours.  I did have some tears during that time of waiting, but like I said before, we mostly just felt peaceful and relaxed.  Again, all the prayers at work.
Right after her surgery in the ICU.  She stayed here the first night.

 
We had to stay at the hospital for 3 days for her to recover, which compared to many of the kids there was so short.  Luckily, we had lots of things to keep her (and us) busy and distracted...

Bubbles...


...the awesome playroom...






She made sure to draw a little heart on her surgery doll :)

Max was in heaven at this place...he wanted Jayne to stay in the hospital forever :)


...the presents :) (thank you everyone!)...
This one in particular is one Shane and I gave to Jayne.  We wanted to make something special for her and I have always wanted to give her some paper dolls.  I found these adorable vintage ones here for free! (I actually copied and pasted my favorite dolls and dresses into photoshop so I wouldn't have to print so much.  If anyone wants those files let me know!)  I put them on magnets too so they would be more durable and easy to play with.  She loves them!  Shoot, I even love playing with them :)


 
 


...lots of movies...
 
 ...and lots of this
  

The best distraction of all?  The visitors!  Thank you again for everyone who came to see us!  (So sorry, I didn't come close to getting pictures of everyone!)
Siggy
 
Max and Lucy, of course
 
Aunt Patty and cousins Keri and Sara

And just some other pictures of our stay there

P.S. Andrea, she seriously loves that cat pillow...thanks again and good choice!




Going home!  She was so excited to ride in her own wheelchair to the car.

 I didn't know what to expect when we got home, but it really was business as usual except for caring for the scar and some meds.  Jayne was bouncing around and back to her old self right off the bat.  We did have an incident about a week after the surgery though.  Max and Jayne thought it would be fun to walk on each other.  ay ay ay.  They had never ever played this game before and of course chose to play it after one had just had their chest cracked wide open.  I was actually in the other room while they were playing it and all of the sudden heard Jayne cry out.  I rushed in and found out what had gone down.  Needless to say I freaked out a little.  I'm thinking Jayne must have freaked out too while Max was just to her stomach and got him off because otherwise, I really think we would have been back to the hospital.  Thankfully all was well and they are NOT allowed to play that game anymore :)

A couple of weeks later, we had to go in for a post-surgery checkup.  Jayne had such a good experience there (she actually loves going to the hospital...that's how good they are:) and we wanted to show our thanks in a special way.  Jayne has been able to bring home a couple of blankets from Primary Childrens and she absolutely loves them.  So we decided to all help sew a blanket and donate it for some other kid to keep as a treasure as well.



Definitely one of the best parts of this whole experience was the outpouring of love that we felt from everybody around us.  Our family and friends were amazing, our ward had a special fast for her among the other nice things they did and one of the most surprising was how supportive Shane's students were.  When Shane first found out that Jayne had to have open-heart surgery, he was at school getting ready to start class.  Through tears he told this particualr class the news.  The next day, they gave him this poster (below) for Jayne and had all signed it.  When the surgery was upon us, many of his students had a special fast for her and all along the way told Shane they were praying for her.  My favorite story is of a boy in one of Shane's classes who Shane thought had pretty much checked out from day one.  He kept his head down throughout most of the classes and never participated.  On the last day of school, right before Jayne's surgery, Shane was saying goodbye to everyone.  This same boy came up to him and said, "Bro Frazier, I really felt the Spirit in your class and learned a lot from you and I just want to let you know that I'm praying for your daughter."  This touched us so much and made us remember just how many people were thinking of her and praying for her.


This picture was taken at the end September.  It is actually even less noticeable today, just a little over a month later.  Jayne is so proud of her scar, which I love.  She is constantly lifting her shirt up to show it to people.  I guess at some point in her life we'll have to put a stop to that :)  I hope she is always proud of it...that she never worries about having a big scar and how it may make her "imperfect" in the eyes of some.  Our scars tell stories and I hope that hers will always help her remember how strong and how loved she truly is.

Wednesday, July 11, 2012

Rainy Days

I know I know, I need to post about Jayne's surgery.  (she's doing great by-the-way)  I have been meaning to, just can't get around to it cause I have been trying to catch up on some photo shoots...Jayne's being one of them.  So for now, enjoy some cute Jayne over here.


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Monday, May 28, 2012

"Here's My Heart, O Take and Seal It"

Some of you already know this, but for those who don't, Jayne was born with a hole between the upper chambers of her heart...an atrial septal defect or ASD.  Over the last few years, the doctors have said there may be a chance that it would close on its own.  If it didn't by the time she was 4, they would have to do surgery.  They were pretty certain that if it didn't close, that they could do a procedure that would go through an artery in her leg and insert a device that would cover the hole...a very non-invasive procedure.  In January, we went in for our annual echocardiogram (basically an ultrasound of the heart).  They found that the hole was not going to close on it's own and that it was too big to do the aforementioned procedure.  They would now have to do open-heart surgery...cut her open, take a piece of her pericardium (lining of the heart) and patch the hole.  I kind of freaked out (not openly, but all the horrors of "what if" started going through my head).  That sounded like a giant deal.  Her cardiologist assured me that it is still a very low-risk surgery and she would be fine.  Over the past few months we have come to grips with it and now it is upon us.  She will go in this Thursday for the surgery.
At her echocardiogram the beginning of May

The toy she gets at the end always helps :)

There is a line in the song "Come Thou Fount of Every Blessing" that says 'Here's my heart o take and seal it'  We had gone to a seminary family night and a wife of one of the teachers sang that song.  I have always loved that song, but then Shane pointed out that line in the song.  Perfect for our little Jayne.  Often she will say, "My heart is broken" which is so sweet and, well, heartbreaking, but we have faith that it will be "sealed" and we put our utter faith in a loving Heavenly Father to be with her every step of the way, come what may.

Our friend Jon is an amazing graphic designer and made this for Jayne.  Jon, thank you so much!  Your are so talented and we love it!

 


Monday, April 23, 2012

A year of bliss :)

 Love this girl.  She really is such a peaceful presence in our sometimes crazy home :)  I remember a few times, when I thought I was about to lose my patience (and my mind) with my other two monkeys (mind you, I do love them a lot, but you moms know how it is sometimes), I would scoop Lucy up, close my eyes and just snuggle her close.  She really just has this calming affect on people and it would help me regroup every time.  She just scoots around, smiles and quietly does her thing and we are all crazy about her.  Happy birthday sweet girl!

 So, for Jayne's first birthday, I gave her one of my old dolls and also one that I made for her.  I was excited to carry that tradition on with Lucy.
 
 
 
  
  
  
 Both Max and Jayne were very hesitant about digging into their cakes when they turned one.  Not Lucy.  It was no holds barred for her.  This is the point where she decided one hand wasn't enough to get the goodness into her mouth.
 
 Then she decided it would double as a pore cleansing mask and hair treatment.
 
 
 Lucy loves her dad.  If he doesn't pick her up right when he gets home, she follows him around and lets him know about it.  So sweet...I absolutely love that this moment is frozen in time forever.


Wednesday, February 29, 2012

Max at 5

Sorry, I know it's all portraits around here lately, but that is just the nature of my life :)  I think you all know this handsome boy.  Can't get enough of that dimpled face.  Check the rest out here.

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